As a caregiver, one of the issues I feel is so important is dealing with doctors who are not educated about Parkinson’s disease. We run into these issues with Charlie’s internist as well as his other doctors. It is also true of hospital staff. It is difficult to get doctors to talk to doctors…although Charlie’s neurologist is always be willing, that is not true of the others. Sometimes I feel like I need to have an “idiots guide to Parkinson’s disease” to hand out. Anyway, this is something that needs to be addressed.
Thanks for putting something together so that we can move forward.